Support Groups
Osteogenesis Imperfecta Foundation (OIF)
The Osteogenesis Imperfecta Foundation, Inc. (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation's mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support. The OI Foundation began in 1970 when a small group of parents from around the nation met in Chicago to discuss OI and its problems. At that time, they banded together to stimulate public and professional interest, support families and encourage research. Today, many of the people who serve on the board of directors and oversee the Foundation's operation have OI themselves or are parents of children with OI.
Broadscope
Broadscope: Disablity Services formly known has United Cerebral Palsy of Southeastern Wisconsin seeks to advance the independence, productivity and rights of citizenship for persons with cerebral palsy and other disabilities and their families in Milwaukee, Waukesha, Ozaukee, Washington, Racine and Kenosha counties. United Cerebral Palsy was founded by a group of concerned parents of children with cerebral palsy in 1954 and incorporated in Wisconsin in 1970.Broadscope serves persons with disabilities and their families in the following ways: Respite Care Program, Independent Living, Employment Services
Spinal Cord Injury (SCI) Registry Sites:
- American Spinal Injury Association (ASIA)
- National Spinal Cord Injury Association(NSCIA)
- Paralyzed Veterans of America
- FacingDisability.com
This site has an informative SCI resource section and an "Ask the Experts" section. "Ask the Experts" has answers to over 400 questions typically asked regarding spinal cord injury. Experts from Rehabilitation Institute in Chicago and Shriners Hospitals for Children, both key institutions that are part of Tech4POD, have provided valuable and informative answers.
Shriners Hospitals for Children
This is Shriners system web-site and links you directly to the SCI section for all three Shriners Hospitals for Children.
Spinal Cord Injury Awareness
This is a new edition on prevention of spinal cord injuries from the Shriners' system web-site.